Family experience in end-of-life care: A literature review

Ji Soo Yoo, Juhee Lee, Soo Jung Chang

Research output: Contribution to journalArticle

Abstract

Purpose: The purpose of this study was to summarize and analyze families’ experiences of end-of-life care by conducting a systematic review of peer reviewed journals both in Korea and abroad. Background: Families play an increasingly important role in care and medical treatment, acting as caregivers or decision makers rather than just being passive observers. It is necessary to understand the experiences of family members in order to provide appropriate care for them. Methods: A systematic search of the literature was performed using the Cumulative Index for Nursing and Allied Health Literature (CINAHL) and the Korea Education & Research Information Service (KERIS) for the period of January 1990 through to December 2006. A total of 35 studies met the inclusion criteria. Results: Seventeen studies used a quantitative design, while 18 studies used qualitative methods. Quantitative studies reported that the family’s quality of life was relatively low when the patient was in need of high medical/nursing services. The perceived burden levels were moderately high, and depression levels were high among family caregivers. Various concepts emerged from the 18 qualitative studies, including psychological issues, physical problems, burdens, needs and interpersonal relationships. Conclusion: This study found that most previous research findings were focused on negative and neutral experiences. A few studies identified positive experiences. Based on the study results, we suggest that nurses need to be more aware of the experiences of patients’ families and their potential needs. [Asian Nursing Research 2008;2(4):223–234]
Original languageEnglish
Pages (from-to)223-234
JournalAsian Nursing Research
Volume2
Issue number4
Publication statusPublished - 2008 Dec

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Terminal Care
Korea
Caregivers
Nursing Services
Nursing Research
Peer Review
Information Services
Research
Nursing
Nurses
Quality of Life
Depression
Psychology
Education
Health

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Yoo, Ji Soo ; Lee, Juhee ; Chang, Soo Jung. / Family experience in end-of-life care: A literature review. In: Asian Nursing Research. 2008 ; Vol. 2, No. 4. pp. 223-234.
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Yoo, JS, Lee, J & Chang, SJ 2008, 'Family experience in end-of-life care: A literature review', Asian Nursing Research, vol. 2, no. 4, pp. 223-234.

Family experience in end-of-life care: A literature review. / Yoo, Ji Soo; Lee, Juhee; Chang, Soo Jung.

In: Asian Nursing Research, Vol. 2, No. 4, 12.2008, p. 223-234.

Research output: Contribution to journalArticle

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AB - Purpose: The purpose of this study was to summarize and analyze families’ experiences of end-of-life care by conducting a systematic review of peer reviewed journals both in Korea and abroad. Background: Families play an increasingly important role in care and medical treatment, acting as caregivers or decision makers rather than just being passive observers. It is necessary to understand the experiences of family members in order to provide appropriate care for them. Methods: A systematic search of the literature was performed using the Cumulative Index for Nursing and Allied Health Literature (CINAHL) and the Korea Education & Research Information Service (KERIS) for the period of January 1990 through to December 2006. A total of 35 studies met the inclusion criteria. Results: Seventeen studies used a quantitative design, while 18 studies used qualitative methods. Quantitative studies reported that the family’s quality of life was relatively low when the patient was in need of high medical/nursing services. The perceived burden levels were moderately high, and depression levels were high among family caregivers. Various concepts emerged from the 18 qualitative studies, including psychological issues, physical problems, burdens, needs and interpersonal relationships. Conclusion: This study found that most previous research findings were focused on negative and neutral experiences. A few studies identified positive experiences. Based on the study results, we suggest that nurses need to be more aware of the experiences of patients’ families and their potential needs. [Asian Nursing Research 2008;2(4):223–234]

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