Aim: To understand the daily lived experiences of adult moyamoya disease patients. Methods: This qualitative study involved a purposive sample of 14 adult moyamoya disease patients diagnosed after 19 years or older at one university hospital in Seoul. Interviews conducted with patients included open-ended questions about the experience of living with moyamoya disease. The data were analyzed using Colaizzi's seven-step method, which derives the theme. Results: Participants' experiences were divided into three themes and eight sub-themes. “Having an unexpected disease that suddenly struck my life” refers to confusion and depression due to the diagnosis of the unexpected illness; “being occasionally anxious about the illness” describes patients' uncertainty about the disease and worrying about passing the disease on to their child; and “living with the disease by going through the disease experience” refers to the process of accepting and adapting to the illness. Conclusions: The findings provide a better understanding of the life changes and lived experiences of adult patients with moyamoya disease. Nurses should consider various aspects when providing care to adult moyamoya disease patients.
Bibliographical noteFunding Information:
This study was funded by the Basic Science Research Program through the National Research Foundation of Korea (NRF) funded by the Ministry of Education (2017R1D1A1B03030706). The funder did not play any role in planning, data collection, implementation, and data analysis or manuscript preparation.
All Science Journal Classification (ASJC) codes
- Research and Theory