TY - JOUR
T1 - Perceived stigma in Korean adolescents with epilepsy
T2 - Effects of knowledge about epilepsy and maternal perception of stigma
AU - Korean QoL in Epilepsy Study Group
AU - Ryu, Han Uk
AU - Lee, Sang Ahm
AU - Eom, Soyong
AU - Kim, Heung Dong
N1 - Funding Information:
The study was financially supported by a grant of Korea UCB Co., Limited .
Publisher Copyright:
© 2014 Published by Elsevier Ltd on behalf of British Epilepsy Association.
PY - 2015
Y1 - 2015
N2 - Purpose: There has been little research on whether the knowledge that adolescents with epilepsy (AWE) or their family have about the condition reduces their perception of stigma. In this study we determine the relation between AWE's perceived stigma of, and knowledge about, epilepsy and maternal perception of stigma. Methods: This was a cross-sectional multicenter study involving AWE and their mothers from 25 secondary or tertiary hospitals in Korea. The level of knowledge about epilepsy was assessed using 34 medical items of the Epilepsy Knowledge Profile-General (EKP-M). Additional questionnaires included the Child Stigma Scale, Parent Stigma Scale, and the Maternal Disclosure Management Scale. Results: A total of 243 AWE and their mothers were included. The mean EKP-M score was 20.7 (range, 12-31) for AWE and 22.0 (range, 11-31) for their mothers. AWE and mothers had a neutral perception of stigma on average, but the maternal concealment behavior was high. Multiple linear regression indicated that AWE's knowledge about epilepsy was significantly related to their perception of stigma. Unexpectedly, AWE with a low level of knowledge reported a higher perception of stigma than those with a very low level of knowledge (β = 0.280, p = 0.040). In addition, higher maternal concealment behavior (β = 0.070, p = 0.002) and receiving polytherapy (β = 0.240, p = 0.046) were independent factors predicting higher perception of stigma in AWE. Conclusion: The knowledge that the AWE had about their epilepsy, maternal concealment behavior, and receiving polytherapy were significantly related to the AWE's perception of stigma.
AB - Purpose: There has been little research on whether the knowledge that adolescents with epilepsy (AWE) or their family have about the condition reduces their perception of stigma. In this study we determine the relation between AWE's perceived stigma of, and knowledge about, epilepsy and maternal perception of stigma. Methods: This was a cross-sectional multicenter study involving AWE and their mothers from 25 secondary or tertiary hospitals in Korea. The level of knowledge about epilepsy was assessed using 34 medical items of the Epilepsy Knowledge Profile-General (EKP-M). Additional questionnaires included the Child Stigma Scale, Parent Stigma Scale, and the Maternal Disclosure Management Scale. Results: A total of 243 AWE and their mothers were included. The mean EKP-M score was 20.7 (range, 12-31) for AWE and 22.0 (range, 11-31) for their mothers. AWE and mothers had a neutral perception of stigma on average, but the maternal concealment behavior was high. Multiple linear regression indicated that AWE's knowledge about epilepsy was significantly related to their perception of stigma. Unexpectedly, AWE with a low level of knowledge reported a higher perception of stigma than those with a very low level of knowledge (β = 0.280, p = 0.040). In addition, higher maternal concealment behavior (β = 0.070, p = 0.002) and receiving polytherapy (β = 0.240, p = 0.046) were independent factors predicting higher perception of stigma in AWE. Conclusion: The knowledge that the AWE had about their epilepsy, maternal concealment behavior, and receiving polytherapy were significantly related to the AWE's perception of stigma.
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U2 - 10.1016/j.seizure.2014.11.010
DO - 10.1016/j.seizure.2014.11.010
M3 - Article
C2 - 25564318
AN - SCOPUS:84927765253
VL - 24
SP - 38
EP - 43
JO - Seizure : the journal of the British Epilepsy Association
JF - Seizure : the journal of the British Epilepsy Association
SN - 1059-1311
IS - C
ER -